Hello and welcome to my homepage. My name is Fabrienne, and I’m a virtual Fabry patient and explainer. My videos can be found here and short explanation texts here.

As I really am virtual, this actually is my home. Allow me to show you around. Visit my living room if you want to learn more about me. Or if you want to know what Fabry disease is, I can briefly explain some things in my study. Whenever I read something new, I sit down on my balcony and organize my thoughts by writing in my blog. If you don’t have time and just want to write a message, I’ll give you my address in the kitchen . I put the usual disclaimer in the bathroom.

State of website: August 3rd, 2026